PKU Carer’s Compendium Launch 2020

PKU Carer’s Compendium Launch 2020

MDDA’s Patient Pathways Program is an outreach support system that provides support, mentoring, educational programs and resources for individuals and families living with an IEM throughout every step of their journey. The Pathways Program includes different...
Celebrating International PKU Day 2020!

Celebrating International PKU Day 2020!

Yesterday, June 28th, was International PKU Day! We hope you spent some time celebrating all the great aspects of PKU that make you, YOU! Did you know? : Robert Guthrie, the inventor of the newborn screening test, was born June 28th, 1916 Horst Bickel, the first to...
Update of MDDA Advocacy for Future Treatments

Update of MDDA Advocacy for Future Treatments

For the past 8 years MDDA has been proactively seeking subsidised access to new therapies for all PKU patients including adults. We advocated strongly for this during the last PBAC submission for BH4 by insisting adults be included in the submission and then ensuring...