MDDA have contacted each of the suppliers of medicines, supplement/formula prescription products and low protein food suppliers. The companies have advised that there are no current stock supply issues or perceived shortages. The companies will restrict orders to...
MDDA sympathises with all of those affected by the catastrophic bushfires that are occurring across the country this summer. We encourage any IEM families seeking assistance to contact the MDDA directly at (03) 9723 0600 or [email protected] and we can connect you...
After an esteemed career, Dr Jim McGill will retire from clinical Metabolic Medicine on the 31st December this year. I am pleased to announce that following a competitive process, Anita Inwood has been appointed as the new Director of Metabolic Medicine. Anita has...
MDDA representatives Louise Healy and Jenny Briant were in Canberra this week continuing to advocate for universal access to best treatments and health outcomes for people living with IEMs. Thank-you to Senator Catryna Bilyk, and also Members Trent Zimmerman, Trevor...
Celebrating International PKU Day! Today on Friday June 28th, we celebrate International PKU Day! Why the 28th? It’s because a combination of three things:1. Robert Guthrie, the inventor of the newborn screening test, was born June 28th, 1916,2. Horst Bickel, the...
Exciting news!!Registrations for the 2019 National Family Retreat are NOW OPEN!The Retreat will take place in beautiful Tasmania from Friday 4th to Sunday 6th October.Come meet other members of the MDDA community, and their families, in a fun and social environment...
MDDA wishes to congratulate the Royal Melbourne Hospital on a great initiative of getting PKU Mums and bubs together to share their experiences. You can read more about the Morning Tea here. This is going to be an annual event with next year set to include...
Such a fantastic weekend was had with our wonderful Western Australian families at our retreat on the 30-31st March. It was so fantastic to see so many new faces.A record for the most adults (once again) at any retreat to date and also most partners/spouses (ever)...
The Metabolic Dietary Disorders Association headed to Australia’s Parliament House in the lead up to Rare Diseases Day on 28 February. Together with Rare Voices Australia, and other important representative groups of rare diseases from across Australia, we were there...
Australians are being asked to give up protein for 24 hours during February to help raise much needed awareness and funds to support those living with a debilitating, rare disease which means they can only eat 1 to 8 grams of protein a day, less than one egg. The...
The Grand Hotel Warrandyte has been awarded the People’s Choice Award at the 2018 Australia Hotels Association (AHA) Victorian Awards this year. The Grand has been recognised for launching Australia’s only low-protein specialised menu for families with a rare Inborn...
The Metabolic Dietary Disorders Association is extremely pleased with the decision of the Pharmaceutical Benefits Advisory Committee (PBAC) to recommend the listing of Sapropterin (sapropterin dihydrochloride) on the Pharmaceutical Benefits Scheme (PBS) for children...
