Live MDDA Submission Q&A Evening Session
WHEN: Tuesday 3rd May 2022 8PM – 8:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub […]
The Great Protein Challenge 2022 Launch
How #lowpro Can You Go? This May we will once again be running The Great Protein Challenge, a national effort where challengers strive to eat under 10 grams of protein […]
Global PKU Patient Conference
Global PKU Patient Conference One World, One Vision 11th September 2021 Event features include: Live and pre-recorded sessions, Panel Q&A discussions, Chatrooms, Virtual scientific showcase, 1on1 chats with scientists and […]
Fundraiser – Quilpie BBQ Breakfast for PKU
MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If […]
Fundraiser – Quilpie BBQ Breakfast for PKU
MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If […]
Rare Disease Day 2021
On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare […]
Rare Disease Day
On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare […]
MDDA @Home Retreat
Date: 10 – 11 October 2020 Location: Online MDDA’s first ever virtual @Home Retreat will be a jam packed weekend full of interactive online sessions, scientific presentations, and educational workshops. […]
PKU Carer’s Compendium Launch 2020
MDDA’s Patient Pathways Program is an outreach support system that provides support, mentoring, educational programs and resources for individuals and families living with an IEM throughout every step of their […]
