MDDA Membership – One Year Only
News Room Contents
- MDDA eNews | January 23 January 2023
- Important Information about the IEM Food Grant 17 January 2023
- 2022 MDDA AGM 17 November 2022
- Understanding Parental Perceptions and Current Community Management Strategies for Sleep Problems in Children with Neurodevelopmental Disorders 27 October 2022
- PKU Gap Research – PKU Qualitative Research – for ages 18-55 27 October 2022
- BREAKING NEWS: The Power of Advocacy a win for equitable treatment for the PKU Community 19 August 2022
- IMPORTANT ANNOUCEMENT – IEM Food Grant August payment 4 August 2022
- UPDATE: The PBAC Outcome 29 July 2022
- 2022 MDDA National Family Retreat – Registrations now OPEN! 19 July 2022
- MDDA Community Announcement 30 June 2022
- Yolanda’s Great Protein Challenge Workplace Event 14 June 2022
- River Yuan 2 June 2022
- Live MDDA Submission Q&A Daytime Session 28 April 2022
- Live MDDA Submission Q&A Evening Session 28 April 2022
- The Great Protein Challenge 2022 Launch 14 April 2022
- Launching Make Some Noise for PKU! 12 April 2022
- Debra Coyler OAM 11 April 2022
- Therese-Alena Gould 11 April 2022
- Trudy Smith 11 April 2022
- MDDA Announcement: Ensuring treatment access for all Australians with PKU 30 March 2022
- Flood Assistance for IEM Families 2 March 2022
- Low Protein Product Supply – Update 2022 11 February 2022
- MDDA December Update 16 December 2021
- MDDA AGM 2021 8 October 2021
- Global PKU Patient Conference 13 August 2021
- MDDA August Update 4 August 2021
- MDDA July Update 6 July 2021
- ANNOUNCEMENT: MDDA Family Retreat QLD July 2021 – POSTPONED 26 February 2021
- Fundraiser – Quilpie BBQ Breakfast for PKU 17 February 2021
- Fundraiser – Quilpie BBQ Breakfast for PKU 17 February 2021
- Rare Disease Day 2021 8 February 2021
- Rare Disease Day 8 February 2021
- Dr Jim McGill receives 2021 Australia Day Honours 4 February 2021
- Kuvan recommended by PBAC for treatment for maternal women living with PKU in Australia 29 January 2021
- PBAC Kuvan Deferral for maternal women with PKU 18 December 2020
- MDDA Office & Supplier Christmas Trading Hours 14 December 2020
- 2021 MDDA Family Retreat Postponement Details 14 December 2020
- MDDA @Home Retreat Video Snapshot 28 October 2020
- Disability Information Hotline 7 September 2020
- MDDA Update – LP Product Supply and Coronavirus 6 August 2020
- PKU Carer’s Compendium Launch 2020 22 July 2020
- Centre of Community-Driven Research releases report on the impact of COVID-19 on health charities in Australia 2 July 2020
- Celebrating International PKU Day 2020! 29 June 2020
- Phase 2 of Clinical Trials for MMA and PA Treatment Approved in America 29 June 2020
- Update of MDDA Advocacy for Future Treatments 16 June 2020
- MDDA Family October Retreat QLD – Postponed* 22 May 2020
- Daily Shoppers ‘Community Hour’ for Healthcare Cardholders – Update* 3 April 2020
- Supply – formulas, supplements, low protein products and medicines update 30 March 2020
- A $750 one off Economic Support Payment for those with Carer Allowance* 19 March 2020
- MDDA Coronavirus (COVID-19) Advice Resource 12 March 2020
- MDDA Update – LP Product Supply and Coronavirus 5 March 2020
- Bushfire assistance for IEM Families in need. 1 January 2020
- New Director of Queensland Metabolic Lifespan Service 20 December 2019
- MDDA Tasmania Christmas Party 2019 30 October 2019
- MDDA Queensland Christmas Party 2019 30 October 2019
- MDDA New South Wales Christmas Party 2019 30 October 2019
- MDDA Victoria Christmas Party 2019 30 October 2019
- MDDA Western Australia Christmas Party 2019 30 October 2019
- MDDA South Australia Christmas Party 2019 30 October 2019
- Advocacy in Canberra* 18 October 2019
- Cocktails (Mocktails) & Dreams 21 August 2019
- Notice – MDDA 2019 Annual General Meeting 20 August 2019
- Night at the Movies (WA 2019) 2 August 2019
- City to Bay Fun Run for Zara and the MDDA! 16 July 2019
- International PKU Day* 28 June 2019
- 2019 National Family Retreat Registrations are now Open!* 28 June 2019
- PKU Mums & Bubs Morning Tea @ Royal Melbourne Hospital* 27 June 2019
- Ben runs again! 15 May 2019
- WA Retreat* 5 April 2019
- Raising Awareness at Parliment House* 5 April 2019
- Australians with a rare genetic disease live on only 1 to 8 grams of protein a day. The Great Protein Challenge asks Australians to walk in their shoes for 24 hours* 1 February 2019
- MEDIA RELEASE Australia’s only low-protein menu voted a winner for The Grand* 18 December 2018
- Sapropterin to be listed as a treatment for children and adolescents living with Phenylketonuria – PKU in Australia* 14 December 2018
- 2019 National Family Retreat – October 6 December 2018
- Australia’s first National Rare Diseases Framework* 19 November 2018
- Tobias S Hagedorn , Founding Trustee of GAP, public announcement speech* 10 September 2018
- Global Association for PKU (GAP) Unveiled* 7 July 2018
- PBAC Kuvan – Deferral* 20 April 2018
- Feb 2018 Parliamentary Luncheon – MDDA Speech: Monique Cooper* 29 March 2018
- University of Western Australia Research Survey* 27 March 2018
- How Low Did You Go? Thank you to all of our PLAYERS and PLEDGERS.* 16 March 2018
- Media Release – When healthy, nutritious foods make you sick … the dilemma facing 1,600[1] Australians* 6 February 2018