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Metabolic Dietary Disorders Association (MDDA)
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MDDA Membership – One Year Only

Jun 8, 2020

Price:
$35 for 1 Year
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If you wish to complete the payment via Bank Transfer, BSB: 013-278 Account: 263145658.
If you wish to pay via Cheque/Money Order, please send to MDDA, PO Box 33, Montrose VIC 3765

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News Room Contents

  • MDDA eNews | January 23 January 2023
  • Important Information about the IEM Food Grant 17 January 2023
  • 2022 MDDA AGM 17 November 2022
  • Understanding Parental Perceptions and Current Community Management Strategies for Sleep Problems in Children with Neurodevelopmental Disorders 27 October 2022
  • PKU Gap Research – PKU Qualitative Research – for ages 18-55 27 October 2022
  • BREAKING NEWS: The Power of Advocacy a win for equitable treatment for the PKU Community 19 August 2022
  • IMPORTANT ANNOUCEMENT – IEM Food Grant August payment 4 August 2022
  • UPDATE: The PBAC Outcome 29 July 2022
  • 2022 MDDA National Family Retreat – Registrations now OPEN! 19 July 2022
  • MDDA Community Announcement 30 June 2022
  • Yolanda’s Great Protein Challenge Workplace Event 14 June 2022
  • River Yuan 2 June 2022
  • Live MDDA Submission Q&A Daytime Session 28 April 2022
  • Live MDDA Submission Q&A Evening Session 28 April 2022
  • The Great Protein Challenge 2022 Launch 14 April 2022
  • Launching Make Some Noise for PKU! 12 April 2022
  • Debra Coyler OAM 11 April 2022
  • Therese-Alena Gould 11 April 2022
  • Trudy Smith 11 April 2022
  • MDDA Announcement: Ensuring treatment access for all Australians with PKU 30 March 2022
  • Flood Assistance for IEM Families 2 March 2022
  • Low Protein Product Supply – Update 2022 11 February 2022
  • MDDA December Update 16 December 2021
  • MDDA AGM 2021 8 October 2021
  • Global PKU Patient Conference 13 August 2021
  • MDDA August Update 4 August 2021
  • MDDA July Update 6 July 2021
  • ANNOUNCEMENT: MDDA Family Retreat QLD July 2021 – POSTPONED 26 February 2021
  • Fundraiser – Quilpie BBQ Breakfast for PKU 17 February 2021
  • Fundraiser – Quilpie BBQ Breakfast for PKU 17 February 2021
  • Rare Disease Day 2021 8 February 2021
  • Rare Disease Day 8 February 2021
  • Dr Jim McGill receives 2021 Australia Day Honours 4 February 2021
  • Kuvan recommended by PBAC for treatment for maternal women living with PKU in Australia 29 January 2021
  • PBAC Kuvan Deferral for maternal women with PKU 18 December 2020
  • MDDA Office & Supplier Christmas Trading Hours 14 December 2020
  • 2021 MDDA Family Retreat Postponement Details 14 December 2020
  • MDDA @Home Retreat Video Snapshot 28 October 2020
  • Disability Information Hotline 7 September 2020
  • MDDA Update – LP Product Supply and Coronavirus 6 August 2020
  • PKU Carer’s Compendium Launch 2020 22 July 2020
  • Centre of Community-Driven Research releases report on the impact of COVID-19 on health charities in Australia 2 July 2020
  • Celebrating International PKU Day 2020! 29 June 2020
  • Phase 2 of Clinical Trials for MMA and PA Treatment Approved in America 29 June 2020
  • Update of MDDA Advocacy for Future Treatments 16 June 2020
  • MDDA Family October Retreat QLD – Postponed* 22 May 2020
  • Daily Shoppers ‘Community Hour’ for Healthcare Cardholders – Update* 3 April 2020
  • Supply – formulas, supplements, low protein products and medicines update 30 March 2020
  • A $750 one off Economic Support Payment for those with Carer Allowance* 19 March 2020
  • MDDA Coronavirus (COVID-19) Advice Resource 12 March 2020
  • MDDA Update – LP Product Supply and Coronavirus 5 March 2020
  • Bushfire assistance for IEM Families in need. 1 January 2020
  • New Director of Queensland Metabolic Lifespan Service 20 December 2019
  • MDDA Tasmania Christmas Party 2019 30 October 2019
  • MDDA Queensland Christmas Party 2019 30 October 2019
  • MDDA New South Wales Christmas Party 2019 30 October 2019
  • MDDA Victoria Christmas Party 2019 30 October 2019
  • MDDA Western Australia Christmas Party 2019 30 October 2019
  • MDDA South Australia Christmas Party 2019 30 October 2019
  • Advocacy in Canberra* 18 October 2019
  • Cocktails (Mocktails) & Dreams 21 August 2019
  • Notice – MDDA 2019 Annual General Meeting 20 August 2019
  • Night at the Movies (WA 2019) 2 August 2019
  • City to Bay Fun Run for Zara and the MDDA! 16 July 2019
  • International PKU Day* 28 June 2019
  • 2019 National Family Retreat Registrations are now Open!* 28 June 2019
  • PKU Mums & Bubs Morning Tea @ Royal Melbourne Hospital* 27 June 2019
  • Ben runs again! 15 May 2019
  • WA Retreat* 5 April 2019
  • Raising Awareness at Parliment House* 5 April 2019
  • Australians with a rare genetic disease live on only 1 to 8 grams of protein a day. The Great Protein Challenge asks Australians to walk in their shoes for 24 hours* 1 February 2019
  • MEDIA RELEASE Australia’s only low-protein menu voted a winner for The Grand* 18 December 2018
  • Sapropterin to be listed as a treatment for children and adolescents living with Phenylketonuria – PKU in Australia* 14 December 2018
  • 2019 National Family Retreat – October 6 December 2018
  • Australia’s first National Rare Diseases Framework* 19 November 2018
  • Tobias S Hagedorn , Founding Trustee of GAP, public announcement speech* 10 September 2018
  • Global Association for PKU (GAP) Unveiled* 7 July 2018
  • PBAC Kuvan – Deferral* 20 April 2018
  • Feb 2018 Parliamentary Luncheon – MDDA Speech: Monique Cooper* 29 March 2018
  • University of Western Australia Research Survey* 27 March 2018
  • How Low Did You Go? Thank you to all of our PLAYERS and PLEDGERS.* 16 March 2018
  • Media Release – When healthy, nutritious foods make you sick … the dilemma facing 1,600[1] Australians* 6 February 2018
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