Supporting those with an inherited metabolic disorder and their families so that they can thrive and live their best life.
We raise awareness of inherited metabolic disorders like PKU and other rare IEpMs, we build programs and develop resources from newly diagnosed infants through all life stages.
“MDDA provides me with a window to what is happening in Australia with regards to my PKU and allows me to reach out to others”Philip
“As a MDDA member I feel connected and not alone with my son’s diagnosis. It eases my mind and reduces my anxiety. I know I will get help if I need it”Melissa
A metabolic disorder is diagnosed by the heel prick test.
The Low Protein Diet is for life for people living with an inherited metabolic disorder.
Care & Support
The MDDA offers various resources and programs to assist in diagnosis and management.
MDDA Update | April
Read the MDDA Update for April ’23! Featuring updates on: the Great Protein Challenge for 2023, important information from the IEM Food Grant Webinar, a recipe for a delicious Easter […]
Breaking News – An Important Win for the Australian PKU Community!
BREAKING NEWS An important win for the Australian PKU Community! 3 April 2023 The Metabolic Dietary Disorders Association (MDDA) is excited to share the long-awaited news that as of 1 April […]
Great Protein Challenge for 2023!
With its success in 2022 and raising an incredible $41,000 our annual fundraising event The Great Protein Challenge is back this May & June! This is MDDA’s only national fundraising […]
MDDA Update | March
Read the MDDA Update for March ’23! Featuring updates on: IEM Food Grant, ’23 Family Retreat, the Great Protein Challenge, and more!
Live MDDA Submission Q&A Daytime Session
WHEN: Friday 6th May 2022 2PM – 2:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub […]
Live MDDA Submission Q&A Evening Session
WHEN: Tuesday 3rd May 2022 8PM – 8:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub […]
The Great Protein Challenge 2022 Launch
How #lowpro Can You Go? This May we will once again be running The Great Protein Challenge, a national effort where challengers strive to eat under 10 grams of protein […]
Global PKU Patient Conference
Global PKU Patient Conference One World, One Vision 11th September 2021 Event features include: Live and pre-recorded sessions, Panel Q&A discussions, Chatrooms, Virtual scientific showcase, 1on1 chats with scientists and […]
The MDDA is supported by funding from the Australian Government under the Health Peak and Advisory Bodies Program. MDDA is registered with the Australian Taxation Office as an Public Benevolent Institution. We are endorsed as a Deductible Gift Recipient (DGR). All donations over $2 are tax deductible.
Disclaimer: Information presented within this website is intended for general purposes only and should not be construed as advising on diagnosis or treatment of any medical condition, if you have interest in any of the foods or treatments contained within this website check first with a qualified health professional.
In the spirit of reconciliation the Metabolic Dietary Disorders Association acknowledges the Traditional Custodians of country throughout Australia and their connections to land, sea and community. We pay our respect to their Elders part and present and extend that respect to all Aboriginal and Torres Strait Islander peoples today.