News Room

MDDA Update | March

MDDA Update | March

Read the MDDA Update for March '23! Featuring updates on: IEM Food Grant, '23 Family Retreat, the...

MDDA eNews | February

MDDA eNews | February

For Rare Disease Day 2023, read our latest eNews! If it’s not landed in your inbox make sure that...

MDDA eNews | January

MDDA eNews | January

Our first eNews for 2023 has been sent out! If it's not landed in your inbox make sure that you...

2022 MDDA AGM

2022 MDDA AGM

It's that time of the year again! You are invited to attend the virtual 2022 MDDA Annual General...

UPDATE: The PBAC Outcome

UPDATE: The PBAC Outcome

As we wait for the August announcement on the PBAC meeting outcome to list sapropterin (Kuvan)...

MDDA Community Announcement

MDDA Community Announcement

Pharmaceutical Benefits Scheme Safety Net threshold reduction from 1 July 2022 As a cost-of-living...

MDDA December Update

MDDA December Update

Last night we held another MDDA Update, presented by MDDA Vice President and PKU Mum Louise Healy....

MDDA AGM 2021

MDDA AGM 2021

The 2021 MDDA Annual General Meeting (AGM) will be held on Tuesday 9th November at 7:45PM AEDT. We...

MDDA August Update

MDDA August Update

MDDA August Update Last night we held another MDDA Update, presented by MDDA President and PKU Mum...

MDDA July Update

MDDA July Update

MDDA July Update Last week MDDA Vice President Louise Healy gave an update on what we have been...

Advocacy in Canberra*

Advocacy in Canberra*

MDDA representatives Louise Healy and Jenny Briant were in Canberra this week continuing to...

International PKU Day*

International PKU Day*

Celebrating International PKU Day! Today on Friday June 28th, we celebrate International PKU Day!...

WA Retreat*

WA Retreat*

Such a fantastic weekend was had with our wonderful Western Australian families at our retreat on...

PBAC Kuvan – Deferral*

PBAC Kuvan – Deferral*

MDDA welcomes the decision by the Pharmaceutical Benefits Advisory Committee (PBAC) to defer the...