Have Your Say: Access to Palynziq for PKU
Have Your Say: Access to Palynziq for PKU A potential new treatment for PKU — Palynziq — may soon be submitted to the PBAC (Pharmaceutical Benefits Advisory Committee) for government […]
Archer’s Fundraiser
Archers’ Metabolic Dietary Disorders Association Fundraiser Date: Saturday 28th June 2025, Time: 5pm – 7.30pmVenue: Mt Gravatt Bowls Club, 1873 Logan Road, Upper Mt Gravatt, Qld 4122Cost: $45 adult, $20 children 5-12 […]
2025 NSW National Family Retreat
Location: Fairmont Resort, Blue MountainsDate: November 21-23, 2025 Join us for an unforgettable weekend at the 2025 MDDA National Family Retreat, held at the stunning Fairmont Resort in the Blue […]
Christmas Appeal 2024
This Christmas, we invite you to be part of something truly special. Metabolic Dietary Disorders Association Inc (MDDA) are the national peak consumer body dedicated to supporting, educating, connecting, and representing […]
Upcoming 2024 MDDA Annual General Meeting
📢 Upcoming 2024 MDDA Annual General Meeting 📢 We’re excited to announce that the MDDA Annual General Meeting (AGM) will be happening soon! This is an important opportunity for our community to […]
MDDA Adult PKU/IEM Lived Experience Support Group
Join us online monthly for our MDDA Adult PKU/IEM Lived Experience Support Group where we’ll chat about all things PKU, IEM, and beyond! 🗓 When: First Wednesday of every month. 🕒 Time: 7:30 PM – 8:30 […]
2024 Christmas Parties
The festive season is just around the corner, and we’re on the lookout for enthusiastic members to help organise Christmas celebrations in the states listed as TBC below 🎄✨ Let’s […]
2024 MDDA National Family Retreat
What an amazing weekend we shared at the 2024 Annual Family Conference! The turnout was incredible with over 160 attendees, it was wonderful to see so many of you there, […]
Tilly’s Rare Disease Day Fundraiser!
This Rare Disease Day, 2024, Tilly is helping to spread awareness of PKU within her small school and wider community and helping to raise funds to support The MDDA. PKU […]
