Teens & Young Adults Outreach Peer Support program
If you’re aged 13–21 and living with an Inborn Error of Protein Metabolism (IEpM), the TOPS Program is for you!
TOPS (Teens Outreach Peer Support) is all about helping teens and young adults like you build confidence, develop leadership skills, and feel supported while navigating life with IEM.
Whether you’re new to managing your condition or ready to step up as a role model for younger kids, TOPS gives you the tools, support, and community to thrive.
Empowering the next generation with confidence, leadership & support
💥 What You Can Expect
The Online TOPS Hub
Get involved from anywhere! Join workshops, watch short videos, take part in forums, and track your progress. The more you engage, the more TOPS Points you earn—these can be turned into scholarships to help you attend events like camp or take part in leadership development activities.
The TOPS Camp @ MDDA National Retreat
Once a year, we bring everyone together for a special weekend packed with learning, fun, and connection.
You’ll meet others just like you, build on what you’ve learned online, and grow your support network.
Leadership Opportunities
Once you’ve attended camp, you’ll have the chance to step up and join the TOPS Leadership Program—a way to give back, inspire others, and shape the future of MDDA through the Youth & Future Leaders Council.
Program Goals
- Feel more confident managing your IEM
- Prepare for adult healthcare and independence
- Connect with others who “get it”
- Learn how to become a positive role model for younger members
- Be part of something bigger—your voice matters!
What You’ll Get Access To
- Super simple guides and resources
- Online workshops and videos on nutrition, health & leadership
- The My Low Pro Pal app for tracking your intake and wellness
- Ongoing support from MDDA’s counsellor and program coordinator
Scholarships & Rewards
- Earn up to $500 per year in scholarship funds through your participation!
- TOPS Points = real value toward:
- Camp fees
- Leadership courses
- Items from the MDDA store
- Other personal development opportunities
Ready to Join the Squad?
