Privacy Policy

Collection Statement

We believe your privacy is important

We have put in place a Privacy Policy which illustrates how we will collect, use, disclose, manage and transfer personal information including health information.  This policy is available on request.

Our service is, in some of its activities, bound by privacy legislation.  If we need to collect health information we are subject to the Health Records Act (Vic).  If we have collected information as a service provider to the State/Federal Government, we are covered by the Information Privacy Act (Vic).  Otherwise, for all other transactions involving personal information, we are not covered by privacy legislation, and our Privacy Policy may not apply.

Purpose for which information is collected

The reasons for which we generally collect personal information and health information are:

  • Children and Parents/Guardians information is collected to enable us to manage and administer the services as we are required.
  • Committee Members information is collected for the management of the Association by the committee.
  • Job applicants, employees, contractors, volunteers and students information is collected to assess and (if necessary) to engage the employees, contractors, volunteers or students as the case may be. It is used to administer the individuals employment, contracts or placement of students and volunteers.

You should be aware that under relevant privacy legislation, other uses and disclosures of personal information are permitted, as set out in that legislation.

For further information on the Privacy Policy please contact the President or Secretary via our Office.

Social Media Policy

The use of social media is to assist in raising awareness about Inborn Errors of Metabolism in Australia, to further each other’s understanding about their IEM and to be of mutual benefit to all members.

The MDDA would like everyone to feel welcome and comfortable whilst using Social Media. We ask that everyone adhere to some basic, common-sense ‘dos and don’ts’ to keep in mind when posting and sharing.


Hit ‘LIKE’ or comment on posts you agree with or find useful.

Ask questions you have – we are here to help and if we don’t know the answer we will do our best to find an answer or another person/organisation who can provide further assistance with your query. Remember, rare disease information is getting better, but for some conditions it is scarce or limited.

Be respectful to other users.

Protect your privacy. Keep your personal details including emails to yourself and use private messages to share this type of information.

Respect the Law and Facebook Terms of Use.

Make use of Facebook’s new private message feature to send direct private messages.


Post any inappropriate comments. Anything found to be defamatory, discriminatory, hateful, threatening, unlawful or offensive in any way will be deleted.

Post any material that is copyrighted or infringes intellectual property rights. Post any material falsely representing another individual, company or government agency.

Post anything with adult themes. This page is for everyone including young users.

Spam. Any commercial spam or advertising will be removed.

Medical Advice

Social Media is not the place to offer medical advice for you and / or your child’s medical condition/s. As well as, information posted on our social media pages should not be considered medical advice, nor it is intended to replace consultation with a qualified health professional.

If you have medical concerns these need to be addressed with your health practitioner. ALL medical emergencies must be directed to professional medical help. Emergencies phone 000 for an ambulance to receive urgent medical attention.

If you having any questions or concerns please don’t hesitate in contacting our office.