MDDA Christmas Office Hours The MDDA Office is taking a break from the 20 December to 29 January 2024 Supplier Christmas Trading Hours Cortex Holiday Please aim to have Formula and Low Protein Food orders in by 5:00pm AEDT on Monday 18th December – for...
Families and friends came together on the 30 July to show their support, raise awareness, connect with the IEM community and most of all have loads of fun at The Great LowPro Kids Play Date. Over 100 kids, parents, grandparents and friends ran around,...
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Oh, what a night! On Saturday 19th August, over 90 attendees adorned their finest attire for an evening filled with glamour and sparkle. The SA Gala Ball was a night to shine a spotlight on the dedication of our community members. Beyond the impressive funds raised,...
Our hallmark event of the year, the MDDA National Family Retreat brings the IEM community together for a weekend of fun, kids & teens club, time to catch up with friends, make new friends, learn new things, great food and so much more! Found out more information...
The MDDA National Family Retreat will be taking place at Sanctuary Cove in Queensland, October 6th – 8th 2023. MDDA’s National Family Retreat is our hallmark event that usually occurs once a year in a prime interstate location. The Retreat attracts all types of family...
Read the MDDA Update for April ’23! Featuring updates on: the Great Protein Challenge for 2023, important information from the IEM Food Grant Webinar, a recipe for a delicious Easter treat and more!
BREAKING NEWS An important win for the Australian PKU Community! 3 April 2023 The Metabolic Dietary Disorders Association (MDDA) is excited to share the long-awaited news that as of 1 April 2023, Kuvan (sapropterin dihydrochloride) is now available on the...
With its success in 2022 and raising an incredible $41,000 our annual fundraising event The Great Protein Challenge is back this May & June! This is MDDA’s only national fundraising event for the year where we aim to raise important awareness and funds in support...
The Department of Health and Aged Care (the Department) review of clients who receive a monthly benefit payment under the Inborn Errors of Metabolism (IEM) program has begun. If you have received a letter from the Department advising that you have an overdue...
For Rare Disease Day 2023, read our latest eNews! If it’s not landed in your inbox make sure that you email [email protected] to be added to the subscriber list. You can read the full eNews below.
