Welcome to the exciting October edition of our eNews! We’re thrilled to bring you a recap of the unforgettable 2023 QLD Retreat, along with the freshest highlights and updates from the MDDA and IEM Community. If you didn’t receive the edition in your...
Check out the latest edition of our e-news, now with a new name MDDA Matters! We’re excited to bring you a collection of updates, and insights that highlight the vibrant community we are a part of. From inspiring member fundraising spotlights to...
Read our latest eNews! If it’s not landed in your inbox make sure that you email [email protected] to be added to the subscriber list. You can read the full eNews below. Click here to read
Our hallmark event of the year, the MDDA National Family Retreat brings the IEM community together for a weekend of fun, kids & teens club, time to catch up with friends, make new friends, learn new things, great food and so much more! Found out more information...
Read the MDDA Update for April ’23! Featuring updates on: the Great Protein Challenge for 2023, important information from the IEM Food Grant Webinar, a recipe for a delicious Easter treat and more!
BREAKING NEWS An important win for the Australian PKU Community! 3 April 2023 The Metabolic Dietary Disorders Association (MDDA) is excited to share the long-awaited news that as of 1 April 2023, Kuvan (sapropterin dihydrochloride) is now available on the...
With its success in 2022 and raising an incredible $41,000 our annual fundraising event The Great Protein Challenge is back this May & June! This is MDDA’s only national fundraising event for the year where we aim to raise important awareness and funds in support...
The Department of Health and Aged Care (the Department) review of clients who receive a monthly benefit payment under the Inborn Errors of Metabolism (IEM) program has begun. If you have received a letter from the Department advising that you have an overdue...
For Rare Disease Day 2023, read our latest eNews! If it’s not landed in your inbox make sure that you email [email protected] to be added to the subscriber list. You can read the full eNews below.
A Member Blog by Anna Hoar, PKU Adult 27/12/22 Christmas indulgence –> getting my phenylalanine levels down to trial Kuvan. Wish me luck! 14/1/23 So, I’ve decided to document this process for my own records and for anyone who is interested. Kuvan has finally been...
Our first eNews for 2023 has been sent out! If it’s not landed in your inbox make sure that you email [email protected] to be added to the subscriber list. You can read the full eNews below.
