Interested in contributing to the future of IEM care? We regularly share research studies, surveys, and clinical trial opportunities relevant to our community. If you’d like to get involved, explore the latest opportunities available and see if there’s a...
Pegvaliase (Palynziq) Consumer Comments – Close 21 January 2026 The Pharmaceutical Benefits Advisory Committee will consider pegvaliase (Palynziq) for the second time in March 2026 for the following proposed populations: Resubmission to request listing of...
You’re invited to the Metabolic Dietary Disorders Association Annual General Meeting Date: 23 November 2025 Time: 10.30am – 11am Place: Fairmont Resort, 1 Sublime Point Road, Leura NSW 2780 Members and Invited Guests Welcome! Hear about our activities over...
This month’s eNews is packed with exciting updates, including:✨ Highlights from the year and what’s ahead for 2025✨ News about the 2025 National Family Retreat—venue and dates announced!✨ Inspiring member stories and achievements✨ Upcoming events and ways to get...
