The Great Protein Challenge 2022 Launch
How #lowpro Can You Go? This May we will once again be running The Great Protein Challenge, a national effort where challengers strive to eat under 10 grams of protein to help raise awareness and funds to support people living with rare genetic metabolic (protein) disorders. Most people living with a protein IEM can only…
Global PKU Patient Conference
Global PKU Patient Conference One World, One Vision 11th September 2021 Event features include: Live and pre-recorded sessions, Panel Q&A discussions, Chatrooms, Virtual scientific showcase, 1on1 chats with scientists and researchers, plus our Patient Connect Lounge! The first of its kind event, bringing the PKU patient community together virtually from around the globe. Together we…
Fundraiser – Quilpie BBQ Breakfast for PKU
MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their support!
Fundraiser – Quilpie BBQ Breakfast for PKU
MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their support!
Rare Disease Day 2021
On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare is STRONG, Rare is PROUD’. We celebrate this day and reflect on the strength of every Australian living with rare genetic disorders known as Inborn Errors…
Rare Disease Day
On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare is STRONG, Rare is PROUD’. We celebrate this day and reflect on the strength of every Australian living with rare genetic disorders known as Inborn Errors…
MDDA @Home Retreat
Date: 10 – 11 October 2020 Location: Online MDDA’s first ever virtual @Home Retreat will be a jam packed weekend full of interactive online sessions, scientific presentations, and educational workshops. There are sessions for people of all protein Inborn Errors of Metabolism and ages – including our PeeKabU kids virtual scavenger hunt and buddy program-…
PKU Carer’s Compendium Launch 2020
MDDA’s Patient Pathways Program is an outreach support system that provides support, mentoring, educational programs and resources for individuals and families living with an IEM throughout every step of their journey. The Pathways Program includes different initiatives and programs that support those with an IEM through every stage of life – from first diagnosis to…
MDDA Tasmania Christmas Party 2019
Date: November 16, 2019 Time: 12:00 pm Location: Tailrace Park Riverside RSVP: stacydennis68@gmail.com by 1st Nov To visit the Facebook Event click here
