Advocacy isn’t easy, but for MDDA, it’s essential. The availability of low-protein milk substitutes under the PBS has been uncertain, creating unnecessary stress for individuals and families managing a low protein diet due to Inborn Errors of Metabolism (IEMs). MDDA has been at the forefront, working closely with suppliers and the Australian Government to push for the return of access and better solutions. Now, we have promising news: low-protein milk is set to remain on the PBS. While there are still a few final steps and details to be ironed out, this marks a significant victory for our community – one that ensures continued access to a critical dietary staple.
When Does It Take Effect
The process is underway with active steps to reinstate the supply of ProZero 1L as swiftly as possible. While this may take a number of weeks, rest assured that every necessary action is being expedited. Various logistical arrangements are in progress for the reinstatement. Further updates on the 250ML variety and also SnoPro are yet to be ascertained, and we will provide regular updates to keep you informed as we learn more.
How We Got Here
Behind this progress is the tireless work of MDDA, led by Louise Healy, engaging with suppliers, government bodies, the PBS Pricing Branch, the Department of Health Office of Health Technology Assessment and key decision-makers. We don’t just ask for change—we educate, we persist, we build relationships and help to facilitate solutions.
We wanted to acknowledge the support of Mark Butler, Minister for Health and Aging and his office and Jo Watson, Chair the HTA Consumer Consultative Committee for their support in resolving this. We will continue to work with them and the Department of Health regarding other nutritional products on the PBS.
Advocacy Needs Support to Continue
Wins like this don’t happen by chance. They take countless hours of work, ongoing engagement, and dedication to advocate. MDDA’s advocacy efforts now rely entirely on volunteers—people giving their personal time, around work and family commitments, to keep fighting for what’s right.
To ensure advocacy remains strong, we need your support.
✔️ Renew or Become a member—Membership strengthens our voice.
✔️ Donate—Every contribution fuels our advocacy work.
✔️ Fundraise—Community-driven support keeps progress moving forward.
By supporting MDDA, you’re ensuring that advocacy doesn’t stop. You’re helping us push for better access, better policies, and a better future for those with IEMs. If you’d like to be involved or support our efforts, email [email protected]—every voice matters.
This is how change happens. Let’s keep going, together.