MDDA Events
Live MDDA Submission Q&A Evening Session
WHEN: Tuesday 3rd May 2022 8PM – 8:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub to ask any questions you might have about both the content and process. Registration is ESSENTIAL so email office@mdda.org.au if you would wish to attend.
The Great Protein Challenge 2022 Launch
How #lowpro Can You Go? This May we will once again be running The Great Protein Challenge, a national effort where challengers strive to eat under 10 grams of protein to help raise awareness and funds to support people living with rare genetic metabolic (protein) disorders. Most people living with a protein IEM can only…
Global PKU Patient Conference
Global PKU Patient Conference One World, One Vision 11th September 2021 Event features include: Live and pre-recorded sessions, Panel Q&A discussions, Chatrooms, Virtual scientific showcase, 1on1 chats with scientists and researchers, plus our Patient Connect Lounge! The first of its kind event, bringing the PKU patient community together virtually from around the globe. Together we…
Fundraiser – Quilpie BBQ Breakfast for PKU
MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their support!
Fundraiser – Quilpie BBQ Breakfast for PKU
MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their support!
Rare Disease Day 2021
On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare is STRONG, Rare is PROUD’. We celebrate this day and reflect on the strength of every Australian living with rare genetic disorders known as Inborn Errors…
