Member Stories

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  • Yolanda’s Great Protein Challenge Workplace Event

    Yolanda’s Great Protein Challenge Workplace Event

    June is an important month in my household. My son, Hudson, was born last year on the 12th of June. His first birthday is this weekend, and we are so excited to celebrate his special day! There is another important day in our calendar this month – the 28th of June, which is International Neonatal…

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  • River Yuan

    River Yuan

    “Congratulations… It’s a boy!” With those words, our precious little son River was welcomed to the world on the 12th July 2019. He was a handsome baby with cute little features, who nestled straight into Mummy, debuted as the new junior to his two older brothers, and was the final piece of the puzzle to…

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  • Debra Coyler OAM

    Debra Coyler OAM

    “The doctor told Mum to put me in an institution and concentrate on my sister” I was diagnosed with PKU at the beginning of 1961 at 2 years 4 months in Sydney, NSW. PKU was treated so very differently back then, there was very little knowledge known in the world at this time. During the…

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  • Therese-Alena Gould

    Therese-Alena Gould

    “I’ve had many jobs and relationships throughout my adult life, but due to concentration issues and not remembering tasks or routines, I have always been let go or dumped.” I was the last born of 8 children and I was diagnosed with PKU. My oldest sister was not so lucky as newborn screening was not…

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  • Trudy Smith

    Trudy Smith

    “The doctors realised that my diet had caused damage to the learning part of my brain and that my parents should consider putting me into an institution because they felt that I would never be able to walk or talk ot be able to live a normal life” When I was 10 ½ months old…

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