“Congratulations… It’s a boy!” With those words, our precious little son River was welcomed to the world on the 12th July 2019. He was a handsome baby with cute little features, who nestled straight into Mummy, debuted as the new junior to his...
WHEN: Friday 6th May 2022 2PM – 2:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub to ask any questions you might have about both the content and process. Registration is...
WHEN: Tuesday 3rd May 2022 8PM – 8:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub to ask any questions you might have about both the content and process....
How #lowpro Can You Go? This May we will once again be running The Great Protein Challenge, a national effort where challengers strive to eat under 10 grams of protein to help raise awareness and funds to support people living with rare genetic metabolic (protein)...
Today we launch our campaign website https://mdda.org.au/makesomenoiseforpku which outlines how you can actively support us to ensure equitable access to medications for PKU adults here in Australia. Did you know? Adults with PKU currently don’t have subsidised...
“The doctor told Mum to put me in an institution and concentrate on my sister” I was diagnosed with PKU at the beginning of 1961 at 2 years 4 months in Sydney, NSW. PKU was treated so very differently back then, there was very little knowledge known in the...
“I’ve had many jobs and relationships throughout my adult life, but due to concentration issues and not remembering tasks or routines, I have always been let go or dumped.” I was the last born of 8 children and I was diagnosed with PKU. My oldest...
“The doctors realised that my diet had caused damage to the learning part of my brain and that my parents should consider putting me into an institution because they felt that I would never be able to walk or talk ot be able to live a normal life” When I...
MDDA Announcement: Ensuring treatment access for all Australians with PKU 30 March 2022 Today (Wednesday, 30 March), the Pharmaceutical Benefits Advisory Committee (PBAC) published the agenda for its next meeting, which will be held from 6-8 July. Two treatments for...
MDDA sympathises with all of those affected by the catastrophic floods in Queensland and New South Wales. We encourage any IEM families seeking assistance to contact the MDDA directly at (03) 9723 0600 or [email protected] and we can connect you with the appropriate...
MDDA’s highest priority during these times is to make sure that the IEM community has the most accurate and up-to-date information when it comes to supply of low protein food, supplements and medication. We are working in a collaborative manner with all...
Last night we held another MDDA Update, presented by MDDA Vice President and PKU Mum Louise Healy. It included an update of everything we have done in the last 2 months including a recap of events and an Advocacy update. Watch the video below and make sure you stay up...
