The 2021 MDDA Annual General Meeting (AGM) will be held on Tuesday 9th November at 7:45PM AEDT. We invite all MDDA members and guests to attend virtually. The AGM will take place on the Member Connect Hub. If you have any questions or are unsure of your Hub login...
Global PKU Patient Conference One World, One Vision 11th September 2021 Event features include: Live and pre-recorded sessions, Panel Q&A discussions, Chatrooms, Virtual scientific showcase, 1on1 chats with scientists and researchers, plus our Patient Connect...
MDDA August Update Last night we held another MDDA Update, presented by MDDA President and PKU Mum Monique Cooper. It included an update of everything we have done in the last month but also showcased the events we have coming up on the Hub! Watch the video below and...
MDDA July Update Last week MDDA Vice President Louise Healy gave an update on what we have been doing with our new inclusion and interactive virtual platform MDDA Connect Hub. Watch the video below for a summary of the virtual events that we have already held on the...
We’ve made the difficult decision to postpone the MDDA Family Retreat for 2021. While we know this is disappointing, we hope you can understand our obligations and responsibilities that we must consider to help keep all attendees, presenters, volunteers and staff...
MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their...
MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their...
On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare is STRONG, Rare is PROUD’. We celebrate this day and reflect on the...
On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare is STRONG, Rare is PROUD’. We celebrate this day and reflect on the...
MDDA extend our most heartfelt congratulations to Dr McGill who was awarded Member (AM) in the General Division in the Australia Day honours for significant service to metabolic medicine, to biochemical genetic pathology, and to medical education. Without hesitation...
PBAC Kuvan Deferral for maternal women with PKU The Metabolic Dietary Disorders Association recognises the decision by the Pharmaceutical Benefits Advisory Committee (PBAC) to defer the listing of Kuvan (sapropterin hydrochloride) on the Pharmaceutical Benefits Scheme...
ANNOUNCEMENT: MDDA Family October Retreat QLD – Further Postponed to July 2021 After months of deliberation we have decided to further postpone the 2020 National MDDA Family Retreat that was set to take place this year at the beautiful Sanctuary Cove in October. As...
