The February edition of our e-news is here! This month, we’re recognising Rare Disease Day, celebrating a huge advocacy win for low-protein milk on the PBS, and looking ahead to an exciting 2025—including Retreat planning! Read it here now! Stay connected, stay...
Location: Fairmont Resort, Blue MountainsDate: November 21-23, 2025 Join us for an unforgettable weekend at the 2025 MDDA National Family Retreat, held at the stunning Fairmont Resort in the Blue Mountains! This annual event is a special opportunity for individuals...
Advocacy isn’t easy, but for MDDA, it’s essential. The availability of low-protein milk substitutes under the PBS has been uncertain, creating unnecessary stress for individuals and families managing a low protein diet due to Inborn Errors of Metabolism (IEMs). MDDA...
The Metabolic Dietary Disorders Association (MDDA), along with patients and clinicians, are profoundly disappointed by Moderna’s sudden decision to withdraw the Australian clinical trial for Methylmalonic Acidemia (MMA) and are calling for Moderna to urgently...
📢 Community Announcement: NutriciaStore Website Update 📢 We’re sharing an update from Nutricia regarding the NutriciaStore website (www.nutriciastore.com.au). For those in our community who rely on NutriciaStore for low-protein ‘Loprofin’ products, here’s what you...
This month’s eNews is packed with exciting updates, including:✨ Highlights from the year and what’s ahead for 2025✨ News about the 2025 National Family Retreat—venue and dates announced!✨ Inspiring member stories and achievements✨ Upcoming events and ways to get...
This Christmas, we invite you to be part of something truly special. Metabolic Dietary Disorders Association Inc (MDDA) are the national peak consumer body dedicated to supporting, educating, connecting, and representing all individuals, their families and...
📢 Upcoming 2024 MDDA Annual General Meeting 📢 We’re excited to announce that the MDDA Annual General Meeting (AGM) will be happening soon! This is an important opportunity for our community to connect, reflect on the past year, discuss future plans, and...
Join us online monthly for our MDDA Adult PKU/IEM Lived Experience Support Group where we’ll chat about all things PKU, IEM, and beyond! 🗓 When: First Wednesday of every month. 🕒 Time: 7:30 PM – 8:30 PM AEDT 💻 Where: Microsoft Teams (link...
Oct 23, 2024
The festive season is just around the corner, and we’re on the lookout for enthusiastic members to help organise Christmas celebrations in the states listed as TBC below 🎄✨ Let’s come together to wrap up another wonderful year for our community. If you’re...
What an amazing weekend we shared at the 2024 Annual Family Conference! The turnout was incredible with over 160 attendees, it was wonderful to see so many of you there, sharing stories, making new connections, and filling the weekend with fun and laughter. It’s...
