The festive season is just around the corner, and we’re on the lookout for enthusiastic members to help organise Christmas celebrations in the states listed as TBC below 🎄✨ Let’s come together to wrap up another wonderful year for our community. If you’re...
What an amazing weekend we shared at the 2024 Annual Family Conference! The turnout was incredible with over 160 attendees, it was wonderful to see so many of you there, sharing stories, making new connections, and filling the weekend with fun and laughter. It’s...
🎉 Welcome to Our First E-Newsletter of the Year! 🎉 Step into 2024 with us as we embark on a journey of growth, success, and unity, starting with a celebration of Rare Disease Day!
This Rare Disease Day, 2024, Tilly is helping to spread awareness of PKU within her small school and wider community and helping to raise funds to support The MDDA.PKU is a rare disorder, it is estimated in Australia that there are approximately 1,600 individuals...
You are invited to attend the virtual 2023 MDDA Annual General Meeting on Wednesday 29th November 2023.  The formal AGM will be preceded with a presentation of the MY Low Pro Pal App launching before end of year. Providing opportunity to be one of the first to test...
Welcome to the exciting October edition of our eNews! We’re thrilled to bring you a recap of the unforgettable 2023 QLD Retreat, along with the freshest highlights and updates from the MDDA and IEM Community. If you didn’t receive the edition in your...
Check out the latest edition of our e-news, now with a new name MDDA Matters! We’re excited to bring you a collection of updates, and insights that highlight the vibrant community we are a part of. From inspiring member fundraising spotlights to...
MDDA worked hand in hand with Anne-Marie in developing this valuable guide. The RMH has developed a guide for pre-conceiving and expectant mothers with Phenylketonuria (PKU), a rare genetic disorder that prevents the normal breakdown of a protein found in most...
