Fundraiser – Quilpie BBQ Breakfast for PKU

Fundraiser – Quilpie BBQ Breakfast for PKU

MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their...
Fundraiser – Quilpie BBQ Breakfast for PKU

Fundraiser – Quilpie BBQ Breakfast for PKU

MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their...
Rare Disease Day 2021

Rare Disease Day 2021

On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare is STRONG, Rare is PROUD’. We celebrate this day and reflect on the...
Rare Disease Day

Rare Disease Day

On 28 February 2021 MDDA join many other global organisations, individuals and families to celebrate International Rare Disease Day. The theme for Rare Disease Day 2021 is ‘Rare is MANY, Rare is STRONG, Rare is PROUD’. We celebrate this day and reflect on the...
MDDA @Home Retreat

MDDA @Home Retreat

Date: 10 – 11 October 2020 Location: Online MDDA’s first ever virtual @Home Retreat will be a jam packed weekend full of interactive online sessions, scientific presentations, and educational workshops. There are sessions for people of all protein Inborn...
PKU Carer’s Compendium Launch 2020

PKU Carer’s Compendium Launch 2020

MDDA’s Patient Pathways Program is an outreach support system that provides support, mentoring, educational programs and resources for individuals and families living with an IEM throughout every step of their journey. The Pathways Program includes different...