Live MDDA Submission Q&A Daytime Session

Live MDDA Submission Q&A Daytime Session

WHEN: Friday 6th May 2022 2PM – 2:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub to ask any questions you might have about both the content and process. Registration is...
Live MDDA Submission Q&A Daytime Session

Live MDDA Submission Q&A Evening Session

WHEN: Tuesday 3rd May 2022 8PM – 8:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub to ask any questions you might have about both the content and process....
The Great Protein Challenge 2022 Launch

The Great Protein Challenge 2022 Launch

How #lowpro Can You Go? This May we will once again be running The Great Protein Challenge, a national effort where challengers strive to eat under 10 grams of protein to help raise awareness and funds to support people living with rare genetic metabolic (protein)...
Global PKU Patient Conference

Global PKU Patient Conference

Global PKU Patient Conference One World, One Vision 11th September 2021 Event features include: Live and pre-recorded sessions, Panel Q&A discussions, Chatrooms, Virtual scientific showcase, 1on1 chats with scientists and researchers, plus our Patient Connect...
Fundraiser – Quilpie BBQ Breakfast for PKU

Fundraiser – Quilpie BBQ Breakfast for PKU

MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their...
Fundraiser – Quilpie BBQ Breakfast for PKU

Fundraiser – Quilpie BBQ Breakfast for PKU

MDDA is thankful to the Welk Family for organising a fundraiser on behalf of MDDA on Rare Disease Day. Their daughter Tilly is a two year old with PKU. If you would like to contribute to the fundraiser click here! MDDA thanks them again for all of their...