Precautions to take for individuals with a ’sick day action plan’.
Some people with inherited metabolic disease are at risk of worsening (decompensation) of their metabolic condition if they develop a viral infection. Any patient requiring a sick day plan, including individuals with urea cycle defects, fatty acid oxidation disorders, maple syrup urine disease, tyrosinaemia type 1, methylmalonic academia, glutaric aciduria type 1 or propionic acidemia. These individuals may have specific supplements or medications to keep at home to use in the event of illness and metabolic decompensation.
Practical steps to take:
- Check that any medications or supplements that you keep at home are in date (not expired for use)
- Keep a copy of your written emergency guidelines handy to show to other healthcare professionals if needed
If you have other specific queries or concerns about your condition then please contact your own metabolic clinic team to discuss these further.