MDDA Events

Christmas Appeal 2024
This Christmas, we invite you to be part of something truly special. Metabolic Dietary Disorders Association Inc (MDDA) are the national peak consumer body dedicated to supporting, educating, connecting, and representing all individuals, their families and carers living with Inborn Errors of protein Metabolism (IEpM). Our programs help support our goal of achieving positive health outcomes…

Upcoming 2024 MDDA Annual General Meeting
📢 Upcoming 2024 MDDA Annual General Meeting 📢 We’re excited to announce that the MDDA Annual General Meeting (AGM) will be happening soon! This is an important opportunity for our community to connect, reflect on the past year, discuss future plans, and address key matters. Your participation and input are invaluable! 🗓 Date: 28th 2pm AEDT 📍 Location: Virtual Link…

MDDA Adult PKU/IEM Lived Experience Support Group
Join us online monthly for our MDDA Adult PKU/IEM Lived Experience Support Group where we’ll chat about all things PKU, IEM, and beyond! 🗓 When: First Wednesday of every month. 🕒 Time: 7:30 PM – 8:30 PM AEDT 💻 Where: Microsoft Teams (link will be sent once you RSVP) Come along to connect with others, share experiences, and maybe learn a tip…

2024 Christmas Parties
The festive season is just around the corner, and we’re on the lookout for enthusiastic members to help organise Christmas celebrations in the states listed as TBC below 🎄✨ Let’s come together to wrap up another wonderful year for our community. If you’re interested in lending a hand, send us a message at office@mdda.org.au, and…

2024 MDDA National Family Retreat
What an amazing weekend we shared at the 2024 Annual Family Conference! The turnout was incredible with over 160 attendees, it was wonderful to see so many of you there, sharing stories, making new connections, and filling the weekend with fun and laughter. It’s inspiring to hear just how much this weekend means to so…

Tilly’s Rare Disease Day Fundraiser!
This Rare Disease Day, 2024, Tilly is helping to spread awareness of PKU within her small school and wider community and helping to raise funds to support The MDDA. PKU is a rare disorder, it is estimated in Australia that there are approximately 1,600 individuals living with PKU and approximately only 25 babies born each…





