News Room

  • University of Western Australia Research Survey*

    University of Western Australia Research Survey*

    Families living with rare diseases are being invited to complete an online questionnaire about preconception carrier-screening (please see web link below). The questionnaire is part of the Australian Genomic Health

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  • How Low Did You Go? Thank you to all of our PLAYERS and PLEDGERS.*

    How Low Did You Go? Thank you to all of our PLAYERS and PLEDGERS.*

    A BIG thank you to all of our Pledgers and Players who took part in the 2018 Great Protein Challenge held in February. Your support means so much to us

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  • Media Release – When healthy, nutritious foods make you sick … the dilemma facing 1,600[1] Australians*

    Media Release – When healthy, nutritious foods make you sick … the dilemma facing 1,600[1] Australians*

    The Great Protein Challenge to put Aussies in the shoes of those living with a debilitating rare disease From 1 February 2018, Australians will be asked to give up protein for 24

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