MDDA Matters February eNews 2025
The February edition of our e-news is here! This month, we’re recognising Rare Disease Day, celebrating a huge advocacy win for low-protein milk on the PBS, and looking ahead to […]
Low-Protein Milk to Remain on the PBS: A Win for Our Community
Advocacy isn’t easy, but for MDDA, it’s essential. The availability of low-protein milk substitutes under the PBS has been uncertain, creating unnecessary stress for individuals and families managing a low […]
Moderna Abandons Australian Rare Disease Community by Withdrawing from Clinical Trial Melbourne, Australia – 17 February 2025 –
The Metabolic Dietary Disorders Association (MDDA), along with patients and clinicians, are profoundly disappointed by Moderna’s sudden decision to withdraw the Australian clinical trial for Methylmalonic Acidemia (MMA) and are […]
Nutricia Store Website Update
📢 Community Announcement: NutriciaStore Website Update 📢 We’re sharing an update from Nutricia regarding the NutriciaStore website (www.nutriciastore.com.au). For those in our community who rely on NutriciaStore for low-protein ‘Loprofin’ products, here’s what […]
Vitaflo, Live Life Well
MDDA Office & Supplier Christmas Trading Hours
MDDA Christmas Office Hours The MDDA Office is taking a break from the 20 December to 13 January 2025 Supplier Christmas Trading Hours Cortex Holiday The Cortex Health office in Melbourne will […]
Upcoming 2024 MDDA Annual General Meeting
📢 Upcoming 2024 MDDA Annual General Meeting 📢 We’re excited to announce that the MDDA Annual General Meeting (AGM) will be happening soon! This is an important opportunity for our community to […]
MDDA Adult PKU/IEM Lived Experience Support Group
Join us online monthly for our MDDA Adult PKU/IEM Lived Experience Support Group where we’ll chat about all things PKU, IEM, and beyond! 🗓 When: First Wednesday of every month. 🕒 Time: 7:30 PM – 8:30 […]
MDDA Matters February eNews
🎉 Welcome to Our First E-Newsletter of the Year! 🎉 Step into 2024 with us as we embark on a journey of growth, success, and unity, starting with a celebration […]
Newsletter Archives
Browse through our library of previous MDDA Matters printed newsletters and click on the image to read or download