PBAC Kuvan Deferral for maternal women with PKU
PBAC Kuvan Deferral for maternal women with PKU The Metabolic Dietary Disorders Association recognises the decision by the Pharmaceutical Benefits Advisory Committee (PBAC) to defer the listing of Kuvan (sapropterin […]
2021 MDDA Family Retreat Postponement Details
ANNOUNCEMENT: MDDA Family October Retreat QLD – Further Postponed to July 2021 After months of deliberation we have decided to further postpone the 2020 National MDDA Family Retreat that was […]
MDDA @Home Retreat Video Snapshot
The MDDA @Home Retreat took place October 10th-11th. Our first virtual event was a HUGE success and we can’t wait to hold more virtual events in the future. Click below […]
Disability Information Hotline
Do you have a disability? Have things changed for you because of coronavirus (COVID-19)? Do you need support in a language other than English? Help is available. Call the Disability […]
MDDA Update – LP Product Supply and Coronavirus
No Change – Due to the Stage 4 restrictions introduced in Victoria, MDDA have been in contact with each of the suppliers of medicines, supplement/formula prescription products and low protein […]
Centre of Community-Driven Research releases report on the impact of COVID-19 on health charities in Australia
This year has been like no other for the MDDA. COVID-19 has put an enormous strain on our resources following the devastating drought, fires and floods. Like other Australian health […]
Celebrating International PKU Day 2020!
Yesterday, June 28th, was International PKU Day! We hope you spent some time celebrating all the great aspects of PKU that make you, YOU! Did you know? : Robert Guthrie, the inventor […]
Phase 2 of Clinical Trials for MMA and PA Treatment Approved in America
MDDA would like to congratulate HemoShear Therapeutics who have received approval to go into phase 2 of their clinical trial for the treatment of patients with methylmalonic acidemia (MMA) and […]
Update of MDDA Advocacy for Future Treatments
For the past 8 years MDDA has been proactively seeking subsidised access to new therapies for all PKU patients including adults. We advocated strongly for this during the last PBAC […]
Newsletter Archives
Browse through our library of previous MDDA Matters printed newsletters and click on the image to read or download