Newborn screening for Phenylketonuria has been in place in Australia for over 50 years. Our research team are currently conducting a study hoping to understand patient outcomes and the lived experience is for patients who were diagnosed by newborn screening in Australia. Information about this research is available in the patient information sheet here –
If you are interested in participating in this research you can contact the recruitment team on the email [email protected].
You are welcome to call the MDDA Patient Pathways Telehealth Nurse for further education & support in considering participation in a clinical research project.
To contact call 03 97230700 or email [email protected]. The patient pathways nurse can call you back at a scheduled time if you prefer.