The February edition of our e-news is here! This month, we’re recognising Rare Disease Day, celebrating a huge advocacy win for low-protein milk on the PBS, and looking ahead to an exciting 2025—including Retreat planning! Read it here now! Stay connected, stay...
Advocacy isn’t easy, but for MDDA, it’s essential. The availability of low-protein milk substitutes under the PBS has been uncertain, creating unnecessary stress for individuals and families managing a low protein diet due to Inborn Errors of Metabolism (IEMs). MDDA...
The Metabolic Dietary Disorders Association (MDDA), along with patients and clinicians, are profoundly disappointed by Moderna’s sudden decision to withdraw the Australian clinical trial for Methylmalonic Acidemia (MMA) and are calling for Moderna to urgently...
📢 Community Announcement: NutriciaStore Website Update 📢 We’re sharing an update from Nutricia regarding the NutriciaStore website (www.nutriciastore.com.au). For those in our community who rely on NutriciaStore for low-protein ‘Loprofin’ products, here’s what you...
MDDA Christmas Office Hours The MDDA Office is taking a break from the 20 December to 13 January 2025 Supplier Christmas Trading Hours Cortex Holiday The Cortex Health office in Melbourne will be closed over the Christmas period from Monday...
Oct 29, 2024
📢 Upcoming 2024 MDDA Annual General Meeting 📢 We’re excited to announce that the MDDA Annual General Meeting (AGM) will be happening soon! This is an important opportunity for our community to connect, reflect on the past year, discuss future plans, and...
Join us online monthly for our MDDA Adult PKU/IEM Lived Experience Support Group where we’ll chat about all things PKU, IEM, and beyond! 🗓 When: First Wednesday of every month. 🕒 Time: 7:30 PM – 8:30 PM AEDT 💻 Where: Microsoft Teams (link...
🎉 Welcome to Our First E-Newsletter of the Year! 🎉 Step into 2024 with us as we embark on a journey of growth, success, and unity, starting with a celebration of Rare Disease Day!
You are invited to attend the virtual 2023 MDDA Annual General Meeting on Wednesday 29th November 2023. The formal AGM will be preceded with a presentation of the MY Low Pro Pal App launching before end of year. Providing opportunity to be one of the first to test...
Welcome to the exciting October edition of our eNews! We’re thrilled to bring you a recap of the unforgettable 2023 QLD Retreat, along with the freshest highlights and updates from the MDDA and IEM Community. If you didn’t receive the edition in your...
Check out the latest edition of our e-news, now with a new name MDDA Matters! We’re excited to bring you a collection of updates, and insights that highlight the vibrant community we are a part of. From inspiring member fundraising spotlights to...
