📢 Community Announcement: NutriciaStore Website Update 📢 We’re sharing an update from Nutricia regarding the NutriciaStore website (www.nutriciastore.com.au). For those in our community who rely on NutriciaStore for low-protein ‘Loprofin’ products, here’s what you...
MDDA Christmas Office Hours  The MDDA Office is taking a break from the 20 December to 13 January 2025 Supplier Christmas Trading Hours Cortex Holiday The Cortex Health office in Melbourne will be closed over the Christmas period from Monday...
Oct 29, 2024
📢 Upcoming 2024 MDDA Annual General Meeting 📢 We’re excited to announce that the MDDA Annual General Meeting (AGM) will be happening soon! This is an important opportunity for our community to connect, reflect on the past year, discuss future plans, and...
Join us online monthly for our MDDA Adult PKU/IEM Lived Experience Support Group where we’ll chat about all things PKU, IEM, and beyond! 🗓 When: First Wednesday of every month. 🕒 Time: 7:30 PM – 8:30 PM AEDT 💻 Where: Microsoft Teams (link...
🎉 Welcome to Our First E-Newsletter of the Year! 🎉 Step into 2024 with us as we embark on a journey of growth, success, and unity, starting with a celebration of Rare Disease Day!
You are invited to attend the virtual 2023 MDDA Annual General Meeting on Wednesday 29th November 2023.  The formal AGM will be preceded with a presentation of the MY Low Pro Pal App launching before end of year. Providing opportunity to be one of the first to test...
Welcome to the exciting October edition of our eNews! We’re thrilled to bring you a recap of the unforgettable 2023 QLD Retreat, along with the freshest highlights and updates from the MDDA and IEM Community. If you didn’t receive the edition in your...
Check out the latest edition of our e-news, now with a new name MDDA Matters! We’re excited to bring you a collection of updates, and insights that highlight the vibrant community we are a part of. From inspiring member fundraising spotlights to...
MDDA worked hand in hand with Anne-Marie in developing this valuable guide. The RMH has developed a guide for pre-conceiving and expectant mothers with Phenylketonuria (PKU), a rare genetic disorder that prevents the normal breakdown of a protein found in most...
Read our latest eNews! If it’s not landed in your inbox make sure that you email [email protected] to be added to the subscriber list. You can read the full eNews below. Click here to read
Our hallmark event of the year, the MDDA National Family Retreat brings the IEM community together for a weekend of fun, kids & teens club, time to catch up with friends, make new friends, learn new things, great food and so much more! Found out more information...