MDDA Update | April

MDDA Update | April

Read the MDDA Update for April ’23! Featuring updates on: the Great Protein Challenge for 2023, important information from the IEM Food Grant Webinar, a recipe for a delicious Easter treat and more!
Great Protein Challenge for 2023!

Great Protein Challenge for 2023!

With its success in 2022 and raising an incredible $41,000 our annual fundraising event The Great Protein Challenge is back this May & June! This is MDDA’s only national fundraising event for the year where we aim to raise important awareness and funds in support...
MDDA Update | March

MDDA Update | March

Read the MDDA Update for March ’23! Featuring updates on: IEM Food Grant, ’23 Family Retreat, the Great Protein Challenge, and more!
Breaking News – An Important Win for the Australian PKU Community!

2023 Reminder – Important Information about the IEM Food Grant

The Department of Health and Aged Care (the Department) review of clients who receive a monthly benefit payment under the Inborn Errors of Metabolism (IEM) program has begun. If you have received a letter from the Department advising that you have an overdue...
MDDA eNews | February

MDDA eNews | February

For Rare Disease Day 2023, read our latest eNews! If it’s not landed in your inbox make sure that you email [email protected] to be added to the subscriber list. You can read the full eNews below.
My Kuvan Trial Journey | Member Blog

My Kuvan Trial Journey | Member Blog

A Member Blog by Anna Hoar, PKU Adult 27/12/22 Christmas indulgence –> getting my phenylalanine levels down to trial Kuvan. Wish me luck! 14/1/23 So, I’ve decided to document this process for my own records and for anyone who is interested. Kuvan has finally been...
MDDA eNews | January

MDDA eNews | January

Our first eNews for 2023 has been sent out! If it’s not landed in your inbox make sure that you email [email protected] to be added to the subscriber list. You can read the full eNews below.
Breaking News – An Important Win for the Australian PKU Community!

Important Information about the IEM Food Grant

The Department of Health and Aged Care (the Department) will be undertaking a review of clients who receive a monthly benefit payment under the Inborn Errors of Metabolism (IEM) program. The review will focus on ensuring client contact details are current and that...
Breaking News – An Important Win for the Australian PKU Community!

2022 MDDA AGM

It’s that time of the year again! You are invited to attend the virtual 2022 MDDA Annual General Meeting on Wednesday 30th November 2022 with Guest Speakers; Dr Sarah Donoghue & Dr Drago Bratkovic.  The formal AGM will be preceded by 2 guest speakers Dr...
Breaking News – An Important Win for the Australian PKU Community!

PKU Gap Research – PKU Qualitative Research – for ages 18-55

Newborn screening for Phenylketonuria has been in place in Australia for over 50 years. Our research team are currently conducting a study hoping to understand patient outcomes and the lived experience is for patients who were diagnosed by newborn screening in...