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River Yuan
“Congratulations… It’s a boy!” With those words, our precious little son River was welcomed to the world on the 12th July 2019. He was a handsome baby with cute little […]
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Live MDDA Submission Q&A Daytime Session
WHEN: Friday 6th May 2022 2PM – 2:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub […]
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Live MDDA Submission Q&A Evening Session
WHEN: Tuesday 3rd May 2022 8PM – 8:40PM WHERE: MDDA Member Connect Hub In preparation of writing your Consumer Comments for the upcoming PBAC join us on the MDDA Member Connect Hub […]
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The Great Protein Challenge 2022 Launch
How #lowpro Can You Go? This May we will once again be running The Great Protein Challenge, a national effort where challengers strive to eat under 10 grams of protein […]
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Launching Make Some Noise for PKU!
Today we launch our campaign website https://mdda.org.au/makesomenoiseforpku which outlines how you can actively support us to ensure equitable access to medications for PKU adults here in Australia. Did you know? […]
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Debra Coyler OAM
“The doctor told Mum to put me in an institution and concentrate on my sister” I was diagnosed with PKU at the beginning of 1961 at 2 years 4 months […]
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Therese-Alena Gould
“I’ve had many jobs and relationships throughout my adult life, but due to concentration issues and not remembering tasks or routines, I have always been let go or dumped.” I […]
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Trudy Smith
“The doctors realised that my diet had caused damage to the learning part of my brain and that my parents should consider putting me into an institution because they felt […]
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MDDA Announcement: Ensuring treatment access for all Australians with PKU
MDDA Announcement: Ensuring treatment access for all Australians with PKU 30 March 2022 Today (Wednesday, 30 March), the Pharmaceutical Benefits Advisory Committee (PBAC) published the agenda for its next meeting, […]
