2023 MDDA Virtual AGM
You are invited to attend the virtual 2023 MDDA Annual General Meeting on Wednesday 29th November 2023. The formal AGM will be preceded with a presentation of the MY Low Pro Pal App launching before end of year. Providing opportunity to be one of the first to test out the much awaited app. AGENDA RSVP is not required,…
MDDA Matters October ENews
Welcome to the exciting October edition of our eNews! We’re thrilled to bring you a recap of the unforgettable 2023 QLD Retreat, along with the freshest highlights and updates from the MDDA and IEM Community. If you didn’t receive the edition in your inbox please email office@mdda.org.au to join our subscriber list.
MDDA Matters|eNews August ’23
Check out the latest edition of our e-news, now with a new name MDDA Matters! We’re excited to bring you a collection of updates, and insights that highlight the vibrant community we are a part of. From inspiring member fundraising spotlights to upcoming events and resources, this issue is designed to keep you connected and informed to…
PKU Maternal Compendium: The first of its kind in Australia!
MDDA worked hand in hand with Anne-Marie in developing this valuable guide. The RMH has developed a guide for pre-conceiving and expectant mothers with Phenylketonuria (PKU), a rare genetic disorder that prevents the normal breakdown of a protein found in most foods. The guide, the first of its kind in Australia, was developed by the…
MDDA eNews | June ’23
Read our latest eNews! If it’s not landed in your inbox make sure that you email office@mdda.org.au to be added to the subscriber list. You can read the full eNews below.
Retreat Registrations Now Open!
Our hallmark event of the year, the MDDA National Family Retreat brings the IEM community together for a weekend of fun, kids & teens club, time to catch up with friends, make new friends, learn new things, great food and so much more! We have a comprehensive retreat website where you will find everything you…
MDDA Update | April
Read the MDDA Update for April ’23! Featuring updates on: the Great Protein Challenge for 2023, important information from the IEM Food Grant Webinar, a recipe for a delicious Easter treat and more!
Breaking News – An Important Win for the Australian PKU Community!
BREAKING NEWS An important win for the Australian PKU Community! 3 April 2023 The Metabolic Dietary Disorders Association (MDDA) is excited to share the long-awaited news that as of 1 April 2023, Kuvan (sapropterin dihydrochloride) is now available on the Pharmaceutical Benefits Scheme (PBS) for the treatment of sapropterin-responsive adults living with hyperphenylalaninemia (HPA) due to…
Great Protein Challenge for 2023!
With its success in 2022 and raising an incredible $41,000 our annual fundraising event The Great Protein Challenge is back this May & June! This is MDDA’s only national fundraising event for the year where we aim to raise important awareness and funds in support of people living with rare genetic metabolic disorders. Are you…
Newsletter Archives
Browse through our library of previous MDDA Matters printed newsletters and click on the image to read or download