MDDA Matters February eNews 2025
The February edition of our e-news is here! This month, we’re recognising Rare Disease Day, celebrating a huge advocacy win for low-protein milk on the PBS, and looking ahead to an exciting 2025—including Retreat planning! Stay connected, stay involved—because together, we are stronger! If you didn’t receive the latest eNews please email [email protected] to be…
Low-Protein Milk to Remain on the PBS: A Win for Our Community
Advocacy isn’t easy, but for MDDA, it’s essential. The availability of low-protein milk substitutes under the PBS has been uncertain, creating unnecessary stress for individuals and families managing a low protein diet due to Inborn Errors of Metabolism (IEMs). MDDA has been at the forefront, working closely with suppliers and the Australian Government to push…
Moderna Abandons Australian Rare Disease Community by Withdrawing from Clinical Trial Melbourne, Australia – 17 February 2025 –
The Metabolic Dietary Disorders Association (MDDA), along with patients and clinicians, are profoundly disappointed by Moderna’s sudden decision to withdraw the Australian clinical trial for Methylmalonic Acidemia (MMA) and are calling for Moderna to urgently reinstate the trial. Moderna’s establishment of trial sites in Melbourne and Sydney in 2024 was positive news for clinicians as…
Nutricia Store Website Update
📢 Community Announcement: NutriciaStore Website Update 📢 We’re sharing an update from Nutricia regarding the NutriciaStore website (www.nutriciastore.com.au). For those in our community who rely on NutriciaStore for low-protein ‘Loprofin’ products, here’s what you need to know: Nutricia is excited to announce a refreshed website that will make shopping easier and more convenient! As part of this update, they are…
Vitaflo, Live Life Well
MDDA Office & Supplier Christmas Trading Hours
MDDA Christmas Office Hours The MDDA Office is taking a break from the 20 December to 13 January 2025 Supplier Christmas Trading Hours Cortex Holiday The Cortex Health office in Melbourne will be closed over the Christmas period from Monday 23rd December (inclusive) until Friday 3rd January. We will reopen on Monday the 6th of January with our usual…
Upcoming 2024 MDDA Annual General Meeting
📢 Upcoming 2024 MDDA Annual General Meeting 📢 We’re excited to announce that the MDDA Annual General Meeting (AGM) will be happening soon! This is an important opportunity for our community to connect, reflect on the past year, discuss future plans, and address key matters. Your participation and input are invaluable! 🗓 Date: 28th 2pm AEDT 📍 Location: Virtual Link…
MDDA Adult PKU/IEM Lived Experience Support Group
Join us online monthly for our MDDA Adult PKU/IEM Lived Experience Support Group where we’ll chat about all things PKU, IEM, and beyond! 🗓 When: First Wednesday of every month. 🕒 Time: 7:30 PM – 8:30 PM AEDT 💻 Where: Microsoft Teams (link will be sent once you RSVP) Come along to connect with others, share experiences, and maybe learn a tip…
MDDA Matters February eNews
🎉 Welcome to Our First E-Newsletter of the Year! 🎉 Step into 2024 with us as we embark on a journey of growth, success, and unity, starting with a celebration of Rare Disease Day!
Newsletter Archives
Browse through our library of previous MDDA Matters printed newsletters and click on the image to read or download