MDDA eNews | June ’23
Read our latest eNews! If it’s not landed in your inbox make sure that you email [email protected] to be added to the subscriber list. You can read the full eNews below.
Retreat Registrations Now Open!
Our hallmark event of the year, the MDDA National Family Retreat brings the IEM community together for a weekend of fun, kids & teens club, time to catch up with […]
MDDA Update | April
Read the MDDA Update for April ’23! Featuring updates on: the Great Protein Challenge for 2023, important information from the IEM Food Grant Webinar, a recipe for a delicious Easter […]
Breaking News – An Important Win for the Australian PKU Community!
BREAKING NEWS An important win for the Australian PKU Community! 3 April 2023 The Metabolic Dietary Disorders Association (MDDA) is excited to share the long-awaited news that as of 1 April […]
Great Protein Challenge for 2023!
With its success in 2022 and raising an incredible $41,000 our annual fundraising event The Great Protein Challenge is back this May & June! This is MDDA’s only national fundraising […]
MDDA Update | March
Read the MDDA Update for March ’23! Featuring updates on: IEM Food Grant, ’23 Family Retreat, the Great Protein Challenge, and more!
2023 Reminder – Important Information about the IEM Food Grant
The Department of Health and Aged Care (the Department) review of clients who receive a monthly benefit payment under the Inborn Errors of Metabolism (IEM) program has begun. If you […]
MDDA eNews | February
For Rare Disease Day 2023, read our latest eNews! If it’s not landed in your inbox make sure that you email [email protected] to be added to the subscriber list. You can read […]
My Kuvan Trial Journey | Member Blog
A Member Blog by Anna Hoar, PKU Adult 27/12/22 Christmas indulgence –> getting my phenylalanine levels down to trial Kuvan. Wish me luck! 14/1/23 So, I’ve decided to document this […]
Newsletter Archives
Browse through our library of previous MDDA Matters printed newsletters and click on the image to read or download