Low Protein Product Supply – Update 2022
MDDA’s highest priority during these times is to make sure that the IEM community has the most accurate and up-to-date information when it comes to supply of low protein food, supplements and medication. We are working in a collaborative manner with all suppliers to ensure accurate information, appropriate advice and support on any supply concerns.…
MDDA December Update
Last night we held another MDDA Update, presented by MDDA Vice President and PKU Mum Louise Healy. It included an update of everything we have done in the last 2 […]
MDDA AGM 2021
The 2021 MDDA Annual General Meeting (AGM) will be held on Tuesday 9th November at 7:45PM AEDT. We invite all MDDA members and guests to attend virtually. The AGM will take place on the Member Connect Hub. If you have any questions or are unsure of your Hub login please email connecthub@mdda.org.au.
MDDA August Update
MDDA August Update Last night we held another MDDA Update, presented by MDDA President and PKU Mum Monique Cooper. It included an update of everything we have done in the last month but also showcased the events we have coming up on the Hub! Watch the video below and make sure you stay tuned for…
MDDA July Update
MDDA July Update Last week MDDA Vice President Louise Healy gave an update on what we have been doing with our new inclusion and interactive virtual platform MDDA Connect Hub. Watch the video below for a summary of the virtual events that we have already held on the hub as well as the upcoming events…
ANNOUNCEMENT: MDDA Family Retreat QLD July 2021 – POSTPONED
We’ve made the difficult decision to postpone the MDDA Family Retreat for 2021. While we know this is disappointing, we hope you can understand our obligations and responsibilities that we must consider to help keep all attendees, presenters, volunteers and staff safe during the pandemic. We’ve also considered the potential impact and effect that a…
Dr Jim McGill receives 2021 Australia Day Honours
MDDA extend our most heartfelt congratulations to Dr McGill who was awarded Member (AM) in the General Division in the Australia Day honours for significant service to metabolic medicine, to biochemical genetic pathology, and to medical education. Without hesitation MDDA were proud to provide a reference for Dr McGill’s nomination. Dr. McGill is a worthy…
Kuvan recommended by PBAC for treatment for maternal women living with PKU in Australia
The Metabolic Dietary Disorders Association is extremely pleased with the decision of the Pharmaceutical Benefits Advisory Committee (PBAC) to recommend the listing of Kuvan (sapropterin dihydrochloride) on the Pharmaceutical Benefits Scheme (PBS) for maternal women living with phenylketonuria (PKU). The PBAC noted there is a high clinical need in a small patient population, and acknowledged the input received from individuals, organisations…
PBAC Kuvan Deferral for maternal women with PKU
PBAC Kuvan Deferral for maternal women with PKU The Metabolic Dietary Disorders Association recognises the decision by the Pharmaceutical Benefits Advisory Committee (PBAC) to defer the listing of Kuvan (sapropterin hydrochloride) on the Pharmaceutical Benefits Scheme (PBS) for maternal women living with phenylketonuria (PKU). We understand that the PKU community may feel disappointed by this decision, however,…
Newsletter Archives
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