MDDA Update – LP Product Supply and Coronavirus
No Change – Due to the Stage 4 restrictions introduced in Victoria, MDDA have been in contact with each of the suppliers of medicines, supplement/formula prescription products and low protein
Centre of Community-Driven Research releases report on the impact of COVID-19 on health charities in Australia
This year has been like no other for the MDDA. COVID-19 has put an enormous strain on our resources following the devastating drought, fires and floods. Like other Australian health
Celebrating International PKU Day 2020!
Yesterday, June 28th, was International PKU Day! We hope you spent some time celebrating all the great aspects of PKU that make you, YOU! Did you know? : Robert Guthrie, the inventor
Phase 2 of Clinical Trials for MMA and PA Treatment Approved in America
MDDA would like to congratulate HemoShear Therapeutics who have received approval to go into phase 2 of their clinical trial for the treatment of patients with methylmalonic acidemia (MMA) and
Update of MDDA Advocacy for Future Treatments
For the past 8 years MDDA has been proactively seeking subsidised access to new therapies for all PKU patients including adults. We advocated strongly for this during the last PBAC
MDDA Family October Retreat QLD – Postponed*
ANNOUNCEMENT: MDDA Family October Retreat QLD – Postponed to April 2021 After months of deliberation we have decided to postpone the 2020 National MDDA Family Retreat that was set to
Daily Shoppers ‘Community Hour’ for Healthcare Cardholders – Update*
Daily Shoppers ‘Community Hour’ for Healthcare Cardholders – Update Apr 3, 2020 Grocery Shopping – Update Coles and Woolworths have introduced a dedicated Community Hour for at-risk customers. Beginning at Coles on 26
Supply – formulas, supplements, low protein products and medicines update
MDDA understand that recently there has been some serious concerns with getting supply of supplements during these uncertain times. We have spoken to all of the suppliers again today, they
A $750 one off Economic Support Payment for those with Carer Allowance*
Mar 19, 2020 As part of the Government’s response to Coronavirus (COVID-19) they are paying $750 one off Economic Support Payment for those living in Australia. You don’t need to
Newsletter Archives
Browse through our library of previous MDDA Matters printed newsletters and click on the image to read or download