MDDA Update – LP Product Supply and Coronavirus
MDDA have contacted each of the suppliers of medicines, supplement/formula prescription products and low protein food suppliers. The companies have advised that there are no current stock supply issues or […]
Bushfire assistance for IEM Families in need.
MDDA sympathises with all of those affected by the catastrophic bushfires that are occurring across the country this summer. We encourage any IEM families seeking assistance to contact the MDDA […]
New Director of Queensland Metabolic Lifespan Service
After an esteemed career, Dr Jim McGill will retire from clinical Metabolic Medicine on the 31st December this year. I am pleased to announce that following a competitive process, Anita […]
Advocacy in Canberra*
MDDA representatives Louise Healy and Jenny Briant were in Canberra this week continuing to advocate for universal access to best treatments and health outcomes for people living with IEMs. Thank-you […]
International PKU Day*
Celebrating International PKU Day! Today on Friday June 28th, we celebrate International PKU Day! Why the 28th? It’s because a combination of three things:1. Robert Guthrie, the inventor of the newborn […]
2019 National Family Retreat Registrations are now Open!*
Exciting news!!Registrations for the 2019 National Family Retreat are NOW OPEN!The Retreat will take place in beautiful Tasmania from Friday 4th to Sunday 6th October.Come meet other members of the […]
PKU Mums & Bubs Morning Tea @ Royal Melbourne Hospital*
MDDA wishes to congratulate the Royal Melbourne Hospital on a great initiative of getting PKU Mums and bubs together to share their experiences. You can read more about the Morning […]
WA Retreat*
Such a fantastic weekend was had with our wonderful Western Australian families at our retreat on the 30-31st March. It was so fantastic to see so many new faces.A record […]
Raising Awareness at Parliment House*
The Metabolic Dietary Disorders Association headed to Australia’s Parliament House in the lead up to Rare Diseases Day on 28 February. Together with Rare Voices Australia, and other important representative groups of rare […]
Newsletter Archives
Browse through our library of previous MDDA Matters printed newsletters and click on the image to read or download