MDDA’s Patient Pathways Program is an outreach support system that provides support, mentoring, educational programs and resources for individuals and families living with an IEM throughout every step of their journey. The Pathways Program includes different...
This year has been like no other for the MDDA. COVID-19 has put an enormous strain on our resources following the devastating drought, fires and floods. Like other Australian health charities supporting patients with chronic, complex care needs, we have seen an impact...
Yesterday, June 28th, was International PKU Day! We hope you spent some time celebrating all the great aspects of PKU that make you, YOU! Did you know? : Robert Guthrie, the inventor of the newborn screening test, was born June 28th, 1916 Horst Bickel, the first to...
MDDA would like to congratulate HemoShear Therapeutics who have received approval to go into phase 2 of their clinical trial for the treatment of patients with methylmalonic acidemia (MMA) and propionic acidemia (PA). This is very exciting news and we would like to...
For the past 8 years MDDA has been proactively seeking subsidised access to new therapies for all PKU patients including adults. We advocated strongly for this during the last PBAC submission for BH4 by insisting adults be included in the submission and then ensuring...
ANNOUNCEMENT: MDDA Family October Retreat QLD – Postponed to April 2021 After months of deliberation we have decided to postpone the 2020 National MDDA Family Retreat that was set to take place this year at the beautiful Sanctuary Cove in October. As much as we would...
Daily Shoppers ‘Community Hour’ for Healthcare Cardholders – Update Apr 3, 2020 Grocery Shopping – Update Coles and Woolworths have introduced a dedicated Community Hour for at-risk customers. Beginning at Coles on 26 March and at Woolworths on 30 March, the stores...
MDDA understand that recently there has been some serious concerns with getting supply of supplements during these uncertain times. We have spoken to all of the suppliers again today, they have advised that there are no shortages of supplements/products/medicines....
Mar 19, 2020 As part of the Government’s response to Coronavirus (COVID-19) they are paying $750 one off Economic Support Payment for those living in Australia. You don’t need to do anything, as they will pay you automatically. You’ll get the money from 31st March...
The health and wellbeing of the IEM community is our absolute priority and we are continuing to monitor the most up to date information on Coronavirus (COVID-19). We have had many questions regarding how this virus may affect those living with an Inborn Error of...
MDDA have contacted each of the suppliers of medicines, supplement/formula prescription products and low protein food suppliers. The companies have advised that there are no current stock supply issues or perceived shortages. The companies will restrict orders to...
MDDA sympathises with all of those affected by the catastrophic bushfires that are occurring across the country this summer. We encourage any IEM families seeking assistance to contact the MDDA directly at (03) 9723 0600 or [email protected] and we can connect you...
