MDDA sympathises with all of those affected by the catastrophic floods in Queensland and New South Wales. We encourage any IEM families seeking assistance to contact the MDDA directly at (03) 9723 0600 or [email protected] and we can connect you with the appropriate...
MDDA’s highest priority during these times is to make sure that the IEM community has the most accurate and up-to-date information when it comes to supply of low protein food, supplements and medication. We are working in a collaborative manner with all...
Last night we held another MDDA Update, presented by MDDA Vice President and PKU Mum Louise Healy. It included an update of everything we have done in the last 2 months including a recap of events and an Advocacy update. Watch the video below and make sure you stay up...
The 2021 MDDA Annual General Meeting (AGM) will be held on Tuesday 9th November at 7:45PM AEDT. We invite all MDDA members and guests to attend virtually. The AGM will take place on the Member Connect Hub. If you have any questions or are unsure of your Hub login...
Yesterday, June 28th, was International PKU Day! We hope you spent some time celebrating all the great aspects of PKU that make you, YOU! Did you know? : Robert Guthrie, the inventor of the newborn screening test, was born June 28th, 1916 Horst Bickel, the first to...
MDDA would like to congratulate HemoShear Therapeutics who have received approval to go into phase 2 of their clinical trial for the treatment of patients with methylmalonic acidemia (MMA) and propionic acidemia (PA). This is very exciting news and we would like to...
For the past 8 years MDDA has been proactively seeking subsidised access to new therapies for all PKU patients including adults. We advocated strongly for this during the last PBAC submission for BH4 by insisting adults be included in the submission and then ensuring...
ANNOUNCEMENT: MDDA Family October Retreat QLD – Postponed to April 2021 After months of deliberation we have decided to postpone the 2020 National MDDA Family Retreat that was set to take place this year at the beautiful Sanctuary Cove in October. As much as we would...
Daily Shoppers ‘Community Hour’ for Healthcare Cardholders – Update Apr 3, 2020 Grocery Shopping – Update Coles and Woolworths have introduced a dedicated Community Hour for at-risk customers. Beginning at Coles on 26 March and at Woolworths on 30 March, the stores...
MDDA understand that recently there has been some serious concerns with getting supply of supplements during these uncertain times. We have spoken to all of the suppliers again today, they have advised that there are no shortages of supplements/products/medicines....
Mar 19, 2020 As part of the Government’s response to Coronavirus (COVID-19) they are paying $750 one off Economic Support Payment for those living in Australia. You don’t need to do anything, as they will pay you automatically. You’ll get the money from 31st March...
The health and wellbeing of the IEM community is our absolute priority and we are continuing to monitor the most up to date information on Coronavirus (COVID-19). We have had many questions regarding how this virus may affect those living with an Inborn Error of...
