MDDA Announcement: Ensuring treatment access for all Australians with PKU 30 March 2022 Today (Wednesday, 30 March), the Pharmaceutical Benefits Advisory Committee (PBAC) published the agenda for its next meeting, which will be held from 6-8 July. Two treatments for...
MDDA sympathises with all of those affected by the catastrophic floods in Queensland and New South Wales. We encourage any IEM families seeking assistance to contact the MDDA directly at (03) 9723 0600 or [email protected] and we can connect you with the appropriate...
MDDA’s highest priority during these times is to make sure that the IEM community has the most accurate and up-to-date information when it comes to supply of low protein food, supplements and medication. We are working in a collaborative manner with all...
Last night we held another MDDA Update, presented by MDDA Vice President and PKU Mum Louise Healy. It included an update of everything we have done in the last 2 months including a recap of events and an Advocacy update. Watch the video below and make sure you stay up...
The 2021 MDDA Annual General Meeting (AGM) will be held on Tuesday 9th November at 7:45PM AEDT. We invite all MDDA members and guests to attend virtually. The AGM will take place on the Member Connect Hub. If you have any questions or are unsure of your Hub login...
MDDA August Update Last night we held another MDDA Update, presented by MDDA President and PKU Mum Monique Cooper. It included an update of everything we have done in the last month but also showcased the events we have coming up on the Hub! Watch the video below and...
MDDA July Update Last week MDDA Vice President Louise Healy gave an update on what we have been doing with our new inclusion and interactive virtual platform MDDA Connect Hub. Watch the video below for a summary of the virtual events that we have already held on the...
We’ve made the difficult decision to postpone the MDDA Family Retreat for 2021. While we know this is disappointing, we hope you can understand our obligations and responsibilities that we must consider to help keep all attendees, presenters, volunteers and staff...
MDDA extend our most heartfelt congratulations to Dr McGill who was awarded Member (AM) in the General Division in the Australia Day honours for significant service to metabolic medicine, to biochemical genetic pathology, and to medical education. Without hesitation...
The Metabolic Dietary Disorders Association is extremely pleased with the decision of the Pharmaceutical Benefits Advisory Committee (PBAC) to recommend the listing of Kuvan (sapropterin dihydrochloride) on the Pharmaceutical Benefits Scheme (PBS) for maternal women...
PBAC Kuvan Deferral for maternal women with PKU The Metabolic Dietary Disorders Association recognises the decision by the Pharmaceutical Benefits Advisory Committee (PBAC) to defer the listing of Kuvan (sapropterin hydrochloride) on the Pharmaceutical Benefits Scheme...
ANNOUNCEMENT: MDDA Family October Retreat QLD – Further Postponed to July 2021 After months of deliberation we have decided to further postpone the 2020 National MDDA Family Retreat that was set to take place this year at the beautiful Sanctuary Cove in October. As...
