News Room

  • MDDA December Update

    MDDA December Update

    Last night we held another MDDA Update, presented by MDDA Vice President and PKU Mum Louise Healy. It included an update of everything we have done in the last 2 […]

    Read More

  • MDDA AGM 2021

    MDDA AGM 2021

    The 2021 MDDA Annual General Meeting (AGM) will be held on Tuesday 9th November at 7:45PM AEDT. We invite all MDDA members and guests to attend virtually. The AGM will […]

    Read More

  • MDDA August Update

    MDDA August Update

    MDDA August Update Last night we held another MDDA Update, presented by MDDA President and PKU Mum Monique Cooper. It included an update of everything we have done in the […]

    Read More

  • MDDA July Update

    MDDA July Update

    MDDA July Update Last week MDDA Vice President Louise Healy gave an update on what we have been doing with our new inclusion and interactive virtual platform MDDA Connect Hub. […]

    Read More

  • ANNOUNCEMENT: MDDA Family Retreat QLD July 2021 – POSTPONED

    ANNOUNCEMENT: MDDA Family Retreat QLD July 2021 – POSTPONED

     We’ve made the difficult decision to postpone the MDDA Family Retreat for 2021. While we know this is disappointing, we hope you can understand our obligations and responsibilities that we […]

    Read More

  • Dr Jim McGill receives 2021 Australia Day Honours

    Dr Jim McGill receives 2021 Australia Day Honours

    MDDA extend our most heartfelt congratulations to Dr McGill who was awarded Member (AM) in the General Division in the Australia Day honours for significant service to metabolic medicine, to […]

    Read More

  • Kuvan recommended by PBAC for treatment for maternal women living with PKU in Australia

    Kuvan recommended by PBAC for treatment for maternal women living with PKU in Australia

    The Metabolic Dietary Disorders Association is extremely pleased with the decision of the Pharmaceutical Benefits Advisory Committee (PBAC) to recommend the listing of Kuvan (sapropterin dihydrochloride) on the Pharmaceutical Benefits Scheme (PBS) for maternal women […]

    Read More

  • PBAC Kuvan Deferral for maternal women with PKU

    PBAC Kuvan Deferral for maternal women with PKU

    PBAC Kuvan Deferral for maternal women with PKU The Metabolic Dietary Disorders Association recognises the decision by the Pharmaceutical Benefits Advisory Committee (PBAC) to defer the listing of Kuvan (sapropterin […]

    Read More

  • 2021 MDDA Family Retreat Postponement Details

    2021 MDDA Family Retreat Postponement Details

    ANNOUNCEMENT: MDDA Family October Retreat QLD – Further Postponed to July 2021 After months of deliberation we have decided to further postpone the 2020 National MDDA Family Retreat that was […]

    Read More

Newsletter Archives

Browse through our library of previous MDDA Matters printed newsletters and click on the image to read or download