News Room

  • BREAKING NEWS: The Power of Advocacy a win for equitable treatment for the PKU Community

    BREAKING NEWS: The Power of Advocacy a win for equitable treatment for the PKU Community

    The Power of Advocacy a win for equitable treatment for the PKU Community  Metabolic Dietary Disorders Association and PKUNSW Association are extremely pleased with the decision of the Pharmaceutical Benefits […]

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  • IMPORTANT ANNOUCEMENT – IEM Food Grant August payment

    IMPORTANT ANNOUCEMENT – IEM Food Grant August payment

    MDDA met with the IEM Department today and they have requested MDDA share the following statement:” “There has been a delay to the monthly payment of the Inborn Errors of […]

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  • UPDATE: The PBAC Outcome

    UPDATE: The PBAC Outcome

    As we wait for the August announcement on the PBAC meeting outcome to list sapropterin (Kuvan) & pegvaliase (Palynziq) on the PBS we would like to share with you 3 […]

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  • 2022 MDDA National Family Retreat – Registrations now OPEN!

    2022 MDDA National Family Retreat – Registrations now OPEN!

    THE WAIT IS OVER! Registrations for the MDDA Retreat are now OPEN! MDDA’s National Family Retreat is our hallmark event that usually occurs once a year in a prime interstate […]

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  • MDDA Community Announcement

    MDDA Community Announcement

    Pharmaceutical Benefits Scheme Safety Net threshold reduction from 1 July 2022 As a cost-of-living measure, the Australian Government is lowering the PBS Safety Net thresholds from 1 July 2022 by […]

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  • The Great Protein Challenge 2022 Launch

    The Great Protein Challenge 2022 Launch

    How #lowpro Can You Go? This May we will once again be running The Great Protein Challenge, a national effort where challengers strive to eat under 10 grams of protein […]

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  • Launching Make Some Noise for PKU!

    Launching Make Some Noise for PKU!

    Today we launch our campaign website https://mdda.org.au/makesomenoiseforpku which outlines how you can actively support us to ensure equitable access to medications for PKU adults here in Australia. Did you know? […]

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  • MDDA Announcement: Ensuring treatment access for all Australians with PKU

    MDDA Announcement: Ensuring treatment access for all Australians with PKU

    MDDA Announcement: Ensuring treatment access for all Australians with PKU 30 March 2022 Today (Wednesday, 30 March), the Pharmaceutical Benefits Advisory Committee (PBAC) published the agenda for its next meeting, […]

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  • Flood Assistance for IEM Families

    Flood Assistance for IEM Families

    MDDA sympathises with all of those affected by the catastrophic floods in Queensland and New South Wales.  We encourage any IEM families seeking assistance to contact the MDDA directly at […]

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Newsletter Archives

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